Infantile Spasms Gone!!!

I forgot to mention that when Infantile Spasms are diagnosed an EEG is performed.  When Noah had his EEG it showed something called Hypsorythmia, which is basically just really chaotic brain waves happening all over his tiny little brain.  Not all diagnosis of Infantile Spasms will have Hypsorythmia but most do.

After Noah was on his steroid for two weeks he was still showing signs of episodes but once again they were taking on a new form.  Now his eyes were rolling upward and locking in place and then his back would arch.  However, he could still take his bottle and cry and laugh and we could actually get his eyes to drop down with distraction. He was also no longer doing any of the mouth chewing or lip stretching motions. He could not do any of this stuff before with the other Infantile Spasms. 

I called his neurologist once again. Told her that he is still having the spasms and that "I think he needs to have a second EEG this week to see if the Hypsorythmia is gone."  She agreed and he was in for another EEG two days later.  (sometimes you have to be real specific with doctors and you will be surprised on how much they will do for you).  I also asked if she would be working the day of the EEG and if there was any way that she could be present for the EEG or afterwards. Our next actual scheduled appointment was two months out so I was just double checking to see if she would.  Surprise to us she came in early that day just to be there to look over his EEG and see us before her other patients arrived. She is wonderful.  I also got a chance to show her a new video we had taken of Noah's newer episodes. 

His EEG showed that as of right now his Infantile Spasms are gone.  G.O.N.E!!!  Yahoo!  No more hypsarythmia or brain damage to my Noah's Noggin :)  However, why then was he still having these strange episodes.  That is when I pulled out the video.....and that is when he got yet another diagnosis to his already long list of life altering diagnosis'......Sandifer's Syndrome.