Counting our Many Blessings

You know that old saying "If it sounds too good to be true...then it might just be."  I keep trying to just push that saying out of my mind because right now things with Noah are almost "too good to be true" and I pray that it continues like this for a long stretch of time.  I will admit that I am getting a bit more anxious each day because I have this total fear that something major is going to happen and kill our high we all have going right now. In the past three weeks Noah has made leaps and bounds.  He has learned more in these three weeks that probably his whole 9 months.  He isn't ready for the next Olympics or anything but let me just list what we have been able to witness him do recently. 
-Bringing his hands together in the center of his body and finding his fingers
-Not only wanting to suck on his thumb but has mastered actually getting it into his mouth on the first try (that is great aim for him).
-he is laughing out loud....like full blown belly chuckles (it is the best!)
-He has not had to have miralax for almost 2 weeks and has been able to go potty daily
-He no longer bawls his eyes out when Jeremy or I sneeze or when our dog growls
-he is moving his neck and head from side to side and isn't favoring the right side too much anymore.  Which means that his head is finally getting a more round shape and his bald spot is starting to fill in
-He can pull his whole body forward from the sitting position.  He can't get up yet from being bent over but that shows me his ab muscles are getting really strong. 
-He has a STRONG desire to sit up which makes it really hard to hold him right now but brings a smile to my face.
-He is starting to show tone in his limbs :) :) 
-his neck is getting so strong that he only drops his head a few times each session now
-he is able to take both hands and push his bottle away or spoon away when we feed him.  Not something I like and gets us really messy but I will take the shoulder and hand movement any day.
-he got his first tooth
-HE GREW!!!!! (finally...he is 28.15 inches long and 18.11 pounds and his head finally grew yay!!!)
-He is tracking us and starting to really recognize us.  I say his name and he will turn his head towards me with a huge smile that melts my heart. 
-He finally made a new sound (ga-ga).  He mastered a-goo long ago but getting him to do any other sound has been a feat.
-he is starting to slightly put weight on his left hand

Can I just tell you how happy and elated we feel right now.  I love being able to tell people when they ask how Noah is doing "Things are fantastic right now!"---and mean it!

We have a busy rest of the year ahead of us.  We meet with the Endocrinologist to have his Cortisol levels checked in September.  We meet the Geneticist next week for the first time.  We have too many therapy appointments to list, we have an MRI in November, we have an eye appointment to find out how his good eye is doing, we have Noah's first birthday to celebrate in November, Plus all the fun holidays to celebrate with our little man.  His neurologist also wants to start weaning him off his Topomax in a few months and are not yet sure what new medication we will be putting him on.  I am so curious, excited, and fearful to transition him off this medication.  It is currently making it so he has zero appetite (feeding problems), can't sweat (overheating problems), and can't learn how to speak (cognitive coordination problems). I pray that these three areas improve but pray more that his seizures do not come back in full force and bring us back to square one again. 

For now we just keep stock piling all the many blessing being send our way from all of you.  We hold them near and dear to our hearts and every day we use them to help us stay positive and excited for Noah's future. 

Noah Camping and trying to sit up on his own

Horrible picture but we bought a Huga-bebe that I just love and Noah is now able to sit in a lovely pink exersaucer and play. Notice his hand actually reached out to play with one of the toys :)

Noah and Sake' our puppy joining dreams

That expression!  Not sure what he was thinking but he was obviously thinking pretty hard at this moment while sitting up again :)